Thursday, June 04, 2009

Update on my cousin! First of all, thank you for your kind words, thoughts and prayers!

Thank you It has been a long long week and a half! All last week every test that Hayley underwent (and there were plenty) showed evidence of a stroke. Around Friday, the moved her to Hopkins in Baltimore...simply because they had the capabilites to do neurosurgery to repair the blood vessels in her brain. Hopkins commenced with some more (and some repetative) tests to pin point exactly what the surgery would entail. Low and behold, all signs of a stroke had disappeared! We rejoiced because this took away the need for invasive brain surgery, it truely was a miracle. However, we were still worried because we needed to know. We needed to do whatever need to prevent anything like this happening again. What caused it? They were hinting at a genetic problem...what would this mean for Hayley's brother....for myself? We really began to pray for answers.

Hayley went through more tests.....they redid tests. They grasped at straws and were somewhat baffled. While this continued, her paralysis and jerking movements got worse. The other day it all fell into place. Hayley is suffering from Reumatic Fever. The treatment.....antibiotics. In fact, every 3 weeks until she is 21, she will be receiving an antibiotic shot to prevent infection which can bring on a flare up of reumatic fever. She will be in physical therapy for her paralysis. The doctors have told us that it will be anywhere from 3 months to a year for her to recover from the effects. She came home yesterday and couldn't be happier!


204.0 that was my weight this morning. Not all that grand. Rather embarrassing to write. But i'm going to do it anyway. Todd and I will be in Lancaster Friday evening and all day Saturday. This is the weekend of the next bike ride that I am participating in with my online blog buddy Donna. Wait, she is actually now my real life friend!!! I'm excited about the ride and both Todd and I are really looking forward to hanging out with Donna and her husband! I have to say that I plan on splurging and eating my shoo-fly pie (which I do only get when I'm up there). And I'll admit, I may get a piece of pie on Friday night AND saturday also. At the bike event, I think that Turkey Hill provides ice cream (they are a sponser/member of the preservation group that is hosting the event)...and yes, I probably will have a small bit of ice cream. If we get to the canning company, yes, I will eat some samples! I'm not going to worry about it. I'll make the best decisions that I can while eating. Enjoy my splurges and on Sunday morning when I get home, I weigh myself and get back on track!


VRaz60 said...

You deserve a treat now and then. You know how to get back on track, and besides all that biking should help a little.

So very glad to hear about your niece. Haven't heard of reumatic fever in quite a while. Hopefully, the full round of antibiotics will do the trick and she will be up and around in good time. Continued good wishes to you all.

Teresa said...

So glad your neice is going to be alright. I hope she doesn't have any troubles after her therapy.

Enjoy your weekend. You'll probably ride most of it off anyways. We all need a break sometimes. Have fun.

Donna B said...

Glad to read some encouraging news about your niece. I am so glad they didn't have to do the surgery. Sounds like she is a real trooper! Only 24 hours and we will be in Lancaster! Just can't wait, seems like it has been months since we did GWG! See you soon!!!

Shrink to Fit said...

Glad to hear your niece is doing better. What a blessing that she didn't need surgery!

All that riding will cancel out a few treats! Enjoy yourself and have fun!

WWSuzi said...

I'm so glad your niece is going to be o.k!!